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　　“作為一名(ming)基層人大(da)代表，我主要從事腦癱(tan)兒童(tong)公(gong)(gong)益救助事業，在山(shan)東財金(jin)(jin)集(ji)團的(de)堅強領導下，公(gong)(gong)益救助項目(mu)已累計為13259名(ming)腦病兒童(tong)患者提(ti)供救助診療服務，成功(gong)救助腦癱(tan)患兒910人，救助區(qu)域涉及新疆、西(xi)藏、重慶等11個省市。經評估檢測(ce)，手術(shu)靶點準(zhun)確(que)率(lv)(lv)達100%，有效率(lv)(lv)達98.2%，治(zhi)療技術(shu)達國際(ji)先進水平。”這(zhe)是全(quan)國人大(da)代表、山(shan)東財金(jin)(jin)健康(kang)集(ji)團諾萊醫學腦癱(tan)兒童(tong)公(gong)(gong)益救助中心主任王川，在第(di)十四屆全(quan)國人民代表大(da)會第(di)一次會議(yi)后的(de)山(shan)東代表團審議(yi)時的(de)發言(yan)。

　　經(jing)統計，我國目前共(gong)有(you)600多萬(wan)名腦(nao)(nao)癱患者，其(qi)中(zhong)12歲(sui)以(yi)下的(de)(de)腦(nao)(nao)癱兒童(tong)(tong)(tong)(tong)有(you)178萬(wan)人(ren)(ren)(ren)，每(mei)年(nian)新(xin)增腦(nao)(nao)癱病例4到6萬(wan)人(ren)(ren)(ren)。據不完全(quan)分析，一名腦(nao)(nao)癱患兒對家庭與社會造成的(de)(de)經(jing)濟(ji)壓力達(da)50多萬(wan)元，而全(quan)國70%的(de)(de)腦(nao)(nao)癱患兒都(dou)生(sheng)活在貧困(kun)地區。在山東省，持有(you)殘(can)疾(ji)(ji)人(ren)(ren)(ren)證的(de)(de)殘(can)疾(ji)(ji)兒童(tong)(tong)(tong)(tong)10.26萬(wan)人(ren)(ren)(ren)，其(qi)中(zhong)腦(nao)(nao)癱兒童(tong)(tong)(tong)(tong)占比(bi)9.5%。山東省委(wei)、省政府(fu)高度重(zhong)視(shi)殘(can)疾(ji)(ji)人(ren)(ren)(ren)康(kang)復(fu)工作，去年(nian)全(quan)省累(lei)計為(wei)殘(can)疾(ji)(ji)人(ren)(ren)(ren)提供基(ji)本(ben)康(kang)復(fu)服務174.8萬(wan)人(ren)(ren)(ren)次(ci)，康(kang)復(fu)救(jiu)助殘(can)疾(ji)(ji)兒童(tong)(tong)(tong)(tong)4.2萬(wan)人(ren)(ren)(ren)次(ci)，殘(can)疾(ji)(ji)人(ren)(ren)(ren)康(kang)復(fu)服務率、殘(can)疾(ji)(ji)兒童(tong)(tong)(tong)(tong)康(kang)復(fu)救(jiu)助總量均持續位居(ju)全(quan)國首位。近(jin)年(nian)來，山東財金健(jian)康(kang)集團旗下諾萊(lai)醫(yi)學攜手山東省殘(can)聯與中(zhong)國健(jian)康(kang)促進(jin)基(ji)金會，先后開展(zhan)“共(gong)享陽光—關愛(ai)殘(can)疾(ji)(ji)兒童(tong)(tong)(tong)(tong)”救(jiu)助項目、“新(xin)的(de)(de)希望(wang)”全(quan)國腦(nao)(nao)癱兒童(tong)(tong)(tong)(tong)公益項目等，開辟了機器(qi)人(ren)(ren)(ren)腦(nao)(nao)立(li)(li)體(ti)定向手術治(zhi)療兒童(tong)(tong)(tong)(tong)腦(nao)(nao)性(xing)癱瘓(huan)的(de)(de)應用系列模(mo)式(shi)，擴展(zhan)機器(qi)人(ren)(ren)(ren)腦(nao)(nao)立(li)(li)體(ti)定向手術治(zhi)療的(de)(de)疾(ji)(ji)病譜，同時加強了外科手術治(zhi)療兒童(tong)(tong)(tong)(tong)腦(nao)(nao)性(xing)癱瘓(huan)的(de)(de)有(you)效性(xing)和安全(quan)性(xing)。

　　對(dui)于如何完(wan)(wan)善(shan)(shan)(shan)全(quan)(quan)國腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)康(kang)(kang)復(fu)(fu)救(jiu)(jiu)(jiu)助體(ti)系，保障殘(can)疾人基(ji)本民(min)生(sheng)、改善(shan)(shan)(shan)殘(can)疾人生(sheng)活(huo)品質(zhi)、促進殘(can)疾人全(quan)(quan)面發(fa)展(zhan)(zhan)，王川提出，一(yi)要(yao)完(wan)(wan)善(shan)(shan)(shan)政策(ce)支(zhi)持和(he)資(zi)金(jin)(jin)(jin)保障，實(shi)現(xian)(xian)腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)全(quan)(quan)生(sheng)命(ming)周期的(de)(de)(de)康(kang)(kang)復(fu)(fu)救(jiu)(jiu)(jiu)助。國家層面建立健全(quan)(quan)慈(ci)(ci)善(shan)(shan)(shan)事業(ye)稅收優惠制(zhi)度，完(wan)(wan)善(shan)(shan)(shan)和(he)落實(shi)激(ji)(ji)勵(li)政策(ce)措施，補短板強(qiang)弱項(xiang)(xiang)，激(ji)(ji)發(fa)全(quan)(quan)社會(hui)(hui)關心(xin)慈(ci)(ci)善(shan)(shan)(shan)、參與(yu)慈(ci)(ci)善(shan)(shan)(shan)的(de)(de)(de)熱情。加(jia)大(da)針對(dui)腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)救(jiu)(jiu)(jiu)助工作的(de)(de)(de)資(zi)金(jin)(jin)(jin)投入，并保障各項(xiang)(xiang)救(jiu)(jiu)(jiu)助政策(ce)的(de)(de)(de)有效(xiao)銜接(jie)與(yu)執行(xing)。總結(jie)推廣(guang)山東省腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)康(kang)(kang)復(fu)(fu)救(jiu)(jiu)(jiu)助專項(xiang)(xiang)行(xing)動(dong)經驗(yan)，在(zai)全(quan)(quan)國建立統一(yi)的(de)(de)(de)腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)監測與(yu)服(fu)務(wu)(wu)體(ti)系，規(gui)范腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)篩(shai)查、治療、康(kang)(kang)復(fu)(fu)、教育、就業(ye)等方面的(de)(de)(de)服(fu)務(wu)(wu)流程和(he)質(zhi)量(liang)管理(li)。完(wan)(wan)善(shan)(shan)(shan)腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)信息化(hua)基(ji)礎建設，實(shi)行(xing)實(shi)名制(zhi)動(dong)態管理(li)，優化(hua)腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)康(kang)(kang)復(fu)(fu)救(jiu)(jiu)(jiu)助申請審核(he)，實(shi)現(xian)(xian)腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)全(quan)(quan)生(sheng)命(ming)周期信息的(de)(de)(de)互聯互通與(yu)一(yi)體(ti)化(hua)救(jiu)(jiu)(jiu)助。二要(yao)加(jia)快技(ji)(ji)(ji)術(shu)(shu)(shu)應(ying)(ying)用(yong)和(he)服(fu)務(wu)(wu)探索，支(zhi)持腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)救(jiu)(jiu)(jiu)治手段的(de)(de)(de)迭代創(chuang)新(xin)。深入實(shi)施創(chuang)新(xin)驅動(dong)發(fa)展(zhan)(zhan)戰略，加(jia)快推動(dong)科技(ji)(ji)(ji)成果轉移(yi)轉化(hua)，充分發(fa)揮(hui)科技(ji)(ji)(ji)創(chuang)新(xin)與(yu)生(sheng)物技(ji)(ji)(ji)術(shu)(shu)(shu)應(ying)(ying)用(yong)助推器作用(yong)，鼓勵(li)和(he)支(zhi)持利用(yong)先進智(zhi)能(neng)技(ji)(ji)(ji)術(shu)(shu)(shu)、生(sheng)物技(ji)(ji)(ji)術(shu)(shu)(shu)提升腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)治療與(yu)康(kang)(kang)復(fu)(fu)的(de)(de)(de)水平與(yu)服(fu)務(wu)(wu)供給，針對(dui)應(ying)(ying)用(yong)智(zhi)能(neng)技(ji)(ji)(ji)術(shu)(shu)(shu)與(yu)生(sheng)物技(ji)(ji)(ji)術(shu)(shu)(shu)的(de)(de)(de)創(chuang)新(xin)項(xiang)(xiang)目，給予政策(ce)和(he)資(zi)金(jin)(jin)(jin)支(zhi)持，切實(shi)推動(dong)解決產業(ye)和(he)企(qi)業(ye)的(de)(de)(de)技(ji)(ji)(ji)術(shu)(shu)(shu)難題。三要(yao)倡(chang)導國企(qi)帶(dai)(dai)頭和(he)全(quan)(quan)民(min)參與(yu)，搭建社會(hui)(hui)性更強(qiang)的(de)(de)(de)公益(yi)慈(ci)(ci)善(shan)(shan)(shan)捐(juan)贈平臺。探索設立全(quan)(quan)國腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)公益(yi)專項(xiang)(xiang)基(ji)金(jin)(jin)(jin)，服(fu)務(wu)(wu)于廣(guang)大(da)兒(er)(er)(er)童(tong)(tong)(tong)的(de)(de)(de)健康(kang)(kang)成長(chang)，充分調動(dong)社會(hui)(hui)力量(liang)以(yi)公益(yi)慈(ci)(ci)善(shan)(shan)(shan)捐(juan)贈形式參與(yu)腦(nao)(nao)(nao)(nao)(nao)癱(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)康(kang)(kang)復(fu)(fu)救(jiu)(jiu)(jiu)助，團(tuan)結(jie)凝聚更廣(guang)泛(fan)的(de)(de)(de)社會(hui)(hui)愛心(xin)力量(liang)。鼓勵(li)國有企(qi)業(ye)結(jie)合(he)鄉村振(zhen)興(xing)、東西(xi)協作、黃河(he)戰略、援(yuan)疆援(yuan)藏等幫扶(fu)項(xiang)(xiang)目，帶(dai)(dai)動(dong)社會(hui)(hui)企(qi)業(ye)和(he)公眾參與(yu)專項(xiang)(xiang)基(ji)金(jin)(jin)(jin)公益(yi)慈(ci)(ci)善(shan)(shan)(shan)捐(juan)贈，積極奉獻愛心(xin)、履行(xing)社會(hui)(hui)責任。

　　黨的二十大報(bao)告和今年的政府工(gong)作報(bao)告都(dou)強調要“促進殘疾人(ren)事業(ye)(ye)全(quan)面發展”。王川表示，山東財(cai)金健康(kang)集團(tuan)將(jiang)以(yi)建設國內一流水平的現代化腦科(ke)學臨床研(yan)究中心(xin)為契機(ji)，加大科(ke)研(yan)力量投入，持續做好(hao)腦癱兒童弱(ruo)勢群體的救助工(gong)作，扛(kang)起國有企業(ye)(ye)社會責任，持續為殘疾人(ren)事業(ye)(ye)插上“科(ke)技的翅膀(bang)”，把更多(duo)的溫(wen)暖傳遞(di)到孩子(zi)們心(xin)中。

【責任編輯：語謙】